NewburyportNews.com, Newburyport, MA

PortWatch

May 17, 2013

Raising awareness

Local women help bring attention to Ehlers-Danlos syndrome

(Continued)

“This is a way of unifying people,” she said. “We’re all in the same boat. The more people that can bail, the better.”

Representatives from the support group, which has more than 300 members, are going to the Statehouse for an awareness event on Wednesday at 2 p.m. The public is invited.

“We’re just going to go and meet and thank the staff,” Cleaveland said.

The group will also have a table set up at Brigham and Women’s Hospital next Friday, May 24, from 8 a.m. to 5 p.m.

To attend the Statehouse event, RSVP to Cleaveland at oriablue@gmail.com before Monday.

For more information about EDS, visit ednf.org.

 

 

 

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