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PortWatch

June 7, 2013

Believing in a cure

Local teen raising money for AT/RT research hopes to meet his idol, Justin Bieber

(Continued)

His fundraising tour comes to an end at the Port Tavern on Thursday with “Jared’s Cure AT/RT Evening,” which will feature music from the band Acoustick from 6 to 9 p.m.

Donation boxes are also located at the Latitude Sports Clubs in Salisbury, Methuen and Peabody, as well as at the Morning Buzz Cafe in Amesbury. Additionally, a GoFundMe page has been set up online and has brought in more than $4,500 so far.

“He knows that he’s raising money for this,” Bedard said. “And I keep telling him that’s for all the other sick kids that are out there that have AT/RT. And he is like, ‘OK, so when is my fundraiser? When am I playing?’”

The Cure ATRT Now nationwide competition to meet Bieber was organized by Avalanna’s parents and started April 1. The top fundraiser will get two tickets to a Bieber concert, airfare and hotel accommodations, and a meeting with the 19-year-old singer before the show.

“He is fun-loving and determined,” Bedard said of Jared, who recently discovered Elvis Presley. “He is independent, or more independent than I want him to be.

“He wants to be like his peers. He doesn’t even know that he has Down syndrome. When he hears me say that, he goes, ‘I don’t have that.’”

If you go

Jared’s Family Dinner

What: Mention Jared’s name while dining at Not Your Average Joe’s, and 15 percent of your food bill will go to Cure ATRT Now.

When: Tuesday, June 11, all day

Where: Not Your Average Joe’s, 1 Market Square, Newburyport

Jared’s Cure AT/RT Evening

What: Fundraising event for Cure ATRT Now featuring music by Acoustick and raffles

When: Thursday, June 13, 6 to 9 p.m.

Where: Port Tavern, 84 State St., Newburyport

For more information about Jared’s fundraising efforts, visit www.facebook.com/JaredsSweet16Dream. For more on Cure ATRT Now, visit www.cureatrt.org.

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