AMESBURY — A benefit will be held tomorrow in Newburyport to raise money for a nonprofit group that raises money to research genetic disorders that cause tumors to grow nerves throughout the body.
D'Ann McBryan, the mother of a 2-year-old girl with neurofibromatosis, also known as NF1, that affects one in every 3,000 births. Molly was diagnosed at 18 months after a year of worry and doctor appointments, said her mother.
"Molly was found to have an optic nerve brain tumor, which could someday take her sight, or worse, as well as other conditions due to (neurofibromatosis), such as slight scoliosis, a birth defect of the chest wall and a syrinx on her lower spine that could someday destroy the spinal cord," McBryan said in an announcement.
The first of what organizers hope to be an annual event will be held from 1 to 4 p.m. at Hope Community Church on Hale Street.
There will be raffles and silent auction items as well as an animal show by Curious Creatures. Music entertainment will be provided by Coastal Music.
McBryan said her daughter is well now, but "that could change overnight."